5.05.2011

Tests, Evaluations and Such...

 
So usually i am not too personal about things on here but i figured this is the easiest way to let family and friends know what is going on with Recker, instead of having to talk about it over and over and over again. Anyways at Recker's 14 month checkup, there were a few things with recker that raised some red flags for the doctors. Without going into much detail, the doctor did the M-CHAT test and recker failed it, so Dr. Guthrie & Dr. Levitt BOTH recommended us to see a Developmental Pediatrician. The wait for an appointment to see a Developmental Pediatrician is months, so while we waited we went through the process of meeting with DDD/AzEIP to get an additional evaluation. They qualified him for speech, OT (occupational therapy-fine motor) and DSI. We finally had our first meeting with Dr. Robin Blitz at Phoenix Children's Hospital who is one of the best Dev. Ped. in the state. She was incredible and made me completely comfortable and was reassuring during the entire process. He has officially been accepted into the Autism Clinic at Phoenix Children's Hospital. We have a long way to go to diagnose (he has NOT been diagnosed with autism) or to HOPEFULLY rule out autism. Our appointment was on Monday and i was there from 7:30 am to almost 2pm it was a very long day. They have some concerns with his previous SEIZURE history and we will be doing a 72 hour sleep study coming up here soon, a genetic test and several other tests and observations they need to do before our next appointment which is on June 1. It has all been very overwhelming but i feel sooo blessed to have experience in this area because of what i do for work, so i feel like im prepared and i know the avenues i need to take, and luckily i have family and friends who have helped me so much when i have questions. We are doing fine, recker is healthy and such an amazing little boy he has my heart entirely and is honestly the light of my life. WE ARE VERY OPTIMISTIC about all these tests and believe that everything will turn out ok. Thank you to all of our family and friends who have showed love and concern!!



**It is hard enough being second guessed and being told that im over reacting from family and friends so please i dont want to hear your negativity. I am NOT over reacting by getting him in this early, in fact i have been told that i am doing a GREAT thing by getting him when i am. He has now been seen by FOUR doctors (two of them specialists and some of the best in their field), and now FOUR ddd/Early Intervention team members who have ALL come to the same conclusion that something IS WRONG, they are not sure if it is AUTISM but it is raising enough flags and he is showing enough signs of Autism to be accepted into their clinic. They would NOT accept anyone into the clinic if there was not a good chance of that Diagnosis. They would NOT accept him if he was "JUST LIKE THE OTHER KIDS HIS AGE", Like i said before we are extremely OPTIMISTIC that it will not be Autism, but it is no ones place to rule it out but the doctors.....WE DONT WANT TO HEAR YOUR ANONYMOUS NEGATIVE COMMENTS. KEEP THEM TO YOURSELF**

16 comments:

  1. Kayla,I'm keeping your family in my prayers! Good luck with everything :)

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  2. i don't know you-willi is a friend of my sister in law-but i work in early intervention in utah. EI is such a good program. good for you guys for going for it!! if you're interested, i know some blogs of mom's whose kids struggle with different delays.

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  3. I applaud you for doing early testing! I know too many parents that ignore the signs and the kids end up suffering because of it. Keep up the good work girl!

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  4. Kayla, I loved your disclaimer at the end, very Mama Bear! I would like to add that I will fight anyone who THINKS about questioning this mama and her mother's intuition.

    Let me know if we can do anything to help, we love you guys!

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  5. I'm glad to hear that Recker is doing well and that he has gotten into the best in the state. I am a HUGE advocate of early intervention and think the early you start, the better. Matthew just qualified for AZEip and everyone tells me he is just fine, when i know he needs the help. im glad you stood up for yourself. Your the mama and you know your son best. Recker is such an adorable little boy, i love seeing his pictures and now he will be in my prayers and you as well.

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  6. Kayla, thank you for being willing to share what is going on. Recker is an amazing kid and is so lucky to have such wonderful parents taking care of him!

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  7. Recker is darling Kayla! Thinking about you guys!

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  8. praying for your sweet boy! you are one good mama.

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  9. Kayla, You are doing the right thing! Dont let anyone tell you otherwise! I have a sister in law, that waited until her son was 2 and still wasnt walking before she finally got him tested. Had she have tested him earlier, they could have prevented a lot of things. She now has two autistic children... if you need someone to talk to, i know alot about it...(if he does end up being diagnosed)

    People keep telling me to quit being paranoid, but Tucker is 6 months and still isnt rolling over... it probably wont be long before i start getting testing done as well. Best of luck, we'll pray for your family

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  10. you should of left the annonymous comment up so people could read it. sometimes people just don't understand when they are not the ones going through it, do what your instincts and the doctors say is right.
    xoxo mama

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  11. i did the same thing with saylor! she had her first tests at a year old, and now at 2 and a half she has come a long way and we think she will be caught up in the near future! you are the mom and you are doing the right thing! when YOU feel the need to HELP your child, its because the holy ghost is telling you that he needs it. there is no greater gift as mothers than the lord's divine intuition! i am so grateful to have it and i know you have it too! thinking about you :]

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  12. my blood is boiling after reading that last paragraph. to think that someone would judge your family and the choices your are making, makes me want to punch a puppy.

    KAYLA you are such an amazing sister, daughter, friends, but most importantly you are SUCH AN AMAZING MOM! you are absolutely right getting him into the tests that you did... ABSOLUTELY RIGHT!!

    i love you and your little family to death. even tho i have never got to meet or hug little reacker, i have watched him grow up through your blog and totally am obsessed with him! *he is perfect in every way*

    oh and one more thing. being a new mom i freak out over the stupidest thing. i had to have the nurse teach me how to put her into the car seat. what i am trying to say is that if anything, and i mean ANYTHING seemed wrong with Brynlee i would go to the ends of the earth to figure it out.

    YOU ARE AMAZING. KEEP UP THE GOOD MOMMY WORK!

    TONS OF LOVE AND PRAYERS COMING YOUR WAY!

    ang

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  13. oh and PS.

    THAT PICTURE IS AMAIZING!

    YOU ARE SOOO TALENTED!!!!

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  14. Girl... you are doing what a wonderful mother does! And i anyone tells you otherwise..... well... you know:) Early is always better, and you can NEVER be too paranoid with your children, they are th most important things the lord has intrusted us with... wouldnt he want them to treat them the very best? you are doing your best, keep it up! SO much love and prayers girl! XOXO

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  15. Thinking about you guys. I think you are really smart to be aware and already helping him. What good parents you are :}

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  16. Kayla, Recker is so blessed to have parents with the life experiences that he does and that you are willing to go the extra mile to make sure he has every opportunity to be healthy and happy. Also the disclaimer is awesome. I think Monya has a good point to share the negative comment so everyone can have a good example of what closed minded looks like.

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